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Replying To @C0774C4St13Y I Started Writin
Replying To @C0774C4St13Y I Started Writing This Response When Everything First Happened, But I Finally Finished It. I'm Posting It Here Instead Of Feeding Into The Comments. I Can't Even Make Or Take Phone Calls (Haven’t Been Able To For Over A Year Now) Because Of The Amount Of Cognitive Energy They Require In The Moment. Before I Even Knew I Had Me, I Had Already Been Diagnosed With Dysautonomia And Lc. I Received Workplace Accommodations, But They Still Weren't Enough. I Was Barely Able To Work, And Eventually I Lost My Job. To Give Anyone A Clearer Picture: What Was I Doing Outside Of Work Besides Few Appts? I Was In Bed. I Was So Lethargic That Sometimes No One Could Wake Me. Sometimes I Couldn't Even Get Out Of Bed Or Move. Welcome To Post Exertional Malaise (Pem), The Hallmark Symptom Of Myalgic Encephalomyelitis A Devastating, Disabling Neuroimmune Disease Recognized With The Icd 10 Code G93.32. A Short Time Later, I Was Diagnosed With Severe Me. I Had To Drive Myself To That Appointment. But What People Don't See Is That I Spent The Remainder Of That Day In Bed, Asleep For Most Of It. And That Wasn't Unusual That Was Every Single Day. Nothing About Being Disabled Is A Handout! I Would Much Rather Be Able To Work And Finish My Stem Major. #Severeme #Noworkaccommodationsavailable #Myalgicencephalomyelitis #Bedbound #Chronicallymary
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